Annabelles Challenge

Annabelle's Challenge is a UK charity dedicated to supporting individuals and families affected by Vascular Ehlers-Danlos Syndrome (vEDS), a rare connective tissue disorder that makes tissues, arteries, and internal organs extremely fragile. Founded in 2013 by Jared and Sarah Griffin after their daughter Annabelle was diagnosed, the charity focuses on education, research, and providing essential support to the vEDS community.

Recognised as the only charity in the UK specifically for vEDS, Annabelle's Challenge has grown to include over 550 members, creating a reliable network for advocacy and assistance. The organisation works closely with the EDS National Diagnostic Service to improve awareness and support both in the UK and internationally.

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