Annabelle's Challenge Vascular Eds Charity
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Annabelle's Challenge is a pioneering charity based in the UK dedicated to supporting individuals and families affected by Vascular Ehlers-Danlos Syndrome (vEDS). Founded in 2013 by Jared and Sarah Griffin following their daughter Annabelle's diagnosis, the charity focuses on providing education, research, and essential resources for the vEDS community.
The organisation is recognised for its significant contributions to raising awareness and advocating for research in this rare connective tissue disorder, which poses serious health risks due to the fragility of arteries and internal organs. With a network of over 550 members, Annabelle's Challenge aims to foster a supportive community while working alongside healthcare professionals to ensure better outcomes for patients.
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