Debra The Butterfly Skin Charity
DEBRA is the UK's leading support organisation dedicated to individuals affected by Epidermolysis Bullosa (EB), commonly known as butterfly skin. With nearly 4,000 members, the charity provides essential resources, healthcare support, and opportunities for community engagement for those living with this rare condition.
In addition to its comprehensive support services, DEBRA is one of the largest funders of research into EB treatments and cures, having invested over £22 million. The charity also hosts various events, fundraising activities, and volunteering opportunities to enhance awareness and outreach within the EB community. Generated from the website
