Debra The Butterfly Skin Charity

DEBRA, the UK's support organisation for individuals affected by epidermolysis bullosa (EB), offers a range of services and resources to nearly 4,000 members, including practical, emotional, and financial support. The charity also plays a significant role in funding innovative research aimed at developing treatments and cures for this rare skin condition.

In addition to their direct support services, DEBRA provides opportunities for community engagement through volunteering, fundraising events, and charity shops, which help raise vital funds for the EB community. Their annual events, including the DEBRA Butterfly Ball and various challenges, foster connections and awareness while promoting a shared commitment to improving the lives of those affected by EB.

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