Marfan Association Uk

The Marfan Association UK is dedicated to supporting individuals affected by Marfan syndrome, a genetic disorder impacting connective tissue and potentially affecting various bodily systems, including the eyes, skeleton, lungs, heart, and blood vessels. Established in 1984, the organization collaborates with medical professionals to enhance understanding and management of the condition, promoting improved quality of life for patients through regular monitoring and lifestyle guidance.

With a strong emphasis on research and education, the Marfan Association UK has contributed to significant advancements in diagnosis and treatment, particularly following the discovery of the Marfan gene and related medical breakthroughs since the early 1990s. As a registered charity, the association is committed to raising awareness and providing resources for those living with Marfan syndrome and their families.

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