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DEBRA is the UK's leading support organisation dedicated to individuals affected by Epidermolysis Bullosa (EB), often referred to as "butterfly skin." With nearly 4,000 members, DEBRA provides essential resources such as emotional, practical, and financial support, alongside opportunities for community connection and engagement. The organisation also plays a significant role in funding research for EB treatments and cures, having invested over £22 million to enhance understanding and support for those living with the condition. Through various fundraising initiatives and events, DEBRA encourages public involvement to help sustain its vital services and expand its outreach within the EB community. Generated from the website