Northern Ireland

22q11 Northern Ireland is a registered charity dedicated to raising awareness about 22q11 Deletion Syndrome and providing support to individuals and families affected by the condition. Founded by Gillian Cassidy, the charity engages with the 22q community through various resources and information aimed at improving understanding and care for those living with the syndrome.

The organisation also highlights the personal journey of families coping with 22q11, as illustrated by Gillian's experience with her daughter Lucia, who has the syndrome. Through research and community engagement, 22q11 Northern Ireland seeks to empower those affected and promote continued education about the condition and its implications.

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