Debra

DEBRA is the UK's dedicated support organization for individuals affected by Epidermolysis Bullosa (EB), also known as "butterfly skin." With nearly 4,000 members, DEBRA provides vital resources, emotional and financial support, and opportunities for members to connect with one another.

As one of the largest funders of EB research in the UK, DEBRA has invested over £22 million to advance treatments and seek potential cures for this rare condition. Through various fundraising initiatives and community events, DEBRA is committed to enhancing the quality of life for those living with EB.

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