Debra The Butterfly Skin Charity

DEBRA is a dedicated charity in the UK that supports individuals affected by Epidermolysis Bullosa (EB), a rare skin condition often referred to as "butterfly skin." With nearly 4,000 members, the organisation offers invaluable resources, community support, and access to specialist services for those living with EB.

In addition to its support initiatives, DEBRA is one of the largest funders of EB research in the UK, providing essential funding for pioneering studies aimed at improving treatments and ultimately finding a cure. The charity also hosts various events and fundraising activities to engage the community and increase awareness about EB.

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