RASopathies Network USA
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The RASopathies Network USA is a dedicated organization focused on supporting individuals affected by RASopathies, a group of rare genetic syndromes. Through resources, research, and collaboration with clinicians and researchers, they aim to raise awareness and improve the lives of those impacted by these conditions.
In partnership with RASopathies Network UK, the organization hosts scientific meetings and symposia to foster knowledge sharing and advancements in the field. Their initiatives also include funding research, clinical trials, and providing resources for families and healthcare professionals worldwide.
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