Proteus Syndrome Foundation

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4915 Dry Stone Dr

Colorado Springs, CO 80923

+1 (901) 756-9375

https://www.proteus-syndrome.org

The Proteus Syndrome Foundation is a 501(c)(3) not-for-profit organization based in Colorado Springs, dedicated to improving the lives of individuals affected by Proteus syndrome through research funding and support initiatives. Their mission encompasses both advancing scientific understanding of the condition, particularly related to the AKT1 gene, and fostering community connections among families and medical professionals.

The foundation offers various resources including a Family Assistance Program, clinical trials information, and educational materials designed to empower patients and their families. By promoting networking opportunities and providing financial assistance, the organization strives to enhance the quality of life for those living with Proteus syndrome.

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United States›Colorado›Colorado Springs›Proteus Syndrome Foundation

Proteus Syndrome Foundation

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