EDSers United

EDSers United is a nonprofit public charity organization based in Plainsboro, NJ, dedicated to serving the medically complex rare disease community, with a particular focus on Ehlers-Danlos Syndrome (EDS) and other rare connective tissue conditions. With a history rooted in supporting the EDS community, EDSers United has expanded its mission to join the global efforts of the Rare Advocacy Movement, providing support and resources for individuals diagnosed with debilitating rare conditions.

Through various programs and fundraisers like Paint to Donate and Crocheted for a Cause, EDSers United aims to raise awareness and funds for research, while also offering art therapy classes and a patient registry to enhance the lived-experiences of those affected by rare diseases. With over 7,000 rare diseases affecting millions of people worldwide, EDSers United strives to make a difference in the lives of individuals and families facing the challenges of these conditions.

Generated from the website