Faith For Hayden Inc
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Faith for Hayden Inc. is a non-profit organization dedicated to raising awareness of Schaaf-Yang Syndrome, a rare genetic disorder that affects individuals like Hayden Faith Blickley, who was born with the condition on November 5, 2021. The organization aims to improve the lives of those living with the syndrome through the advancement of research and sharing Hayden's inspiring story.
Since its discovery in 2013, Schaaf-Yang Syndrome has had only a few hundred confirmed cases worldwide, highlighting the need for greater awareness and support. Faith for Hayden Inc. is committed to fostering understanding and providing resources for affected individuals and their families.
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